Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and perseverance as ... called the worst disease known to mankind. Paperback – 15 July 2015

Still reading this book so will enter review when l have finished.

This book is incredibly moving. I have Huntington's Disease myself, which is an incurable terminal neurodegenerative condition. It is also inherited. HD is like having ALS, Parkinson’s and Alzheimer’s – simultaneously. The first horror is inheriting it from your parents. The second horror is passing it on to your children. Please read this book. Let's make this the last generation with Huntington's Disease.

This book is incredibly moving. I have Huntington's Disease myself, which is an incurable terminal neurodegenerative condition. It is also inherited. HD is like having ALS, Parkinson’s and Alzheimer’s – simultaneously. The first horror is inheriting it from your parents. The second horror is passing it on to your children. Please read this book. Let's make this the last generation with Huntington's Disease.

I have worked on a unit with HD and ALS residents since Jan. 2020. Working on a unit with residents with HD is both challenging and rewarding. I was looking for a book that would share stories from varioous perspectives. Ths book looks at the lives of both those inflicted with HD their families (some who inherit the gene and some that do not) and how this dis-ease has changed their lives. It provided so much more understanding of a perspective that so many do not see...I was so shokced in a few of the stories at how badly some inflicted with HD and their familiy were treated by nursing homes. Dx HD is still in its infancy as is it's treatment. This book also reinforced what I feel as I work with residents with HD and their families.....that this disease is not the person.....that they deserve to be treated with respect and understanding and as tough as it may be they deserve to have their dignity and quality maintained. This book has given insight as to the importance of getting to know what the person was like before HD interrupted their lives....which may be only through the eyes of their family by the time they arrive on our unit. Thank you for this book.

Caregivers and PHD 's (people with Huntington's disease) give you a glimpse of life with Huntington's disease. It isn't an easy book to read, because HD is awful, and there is no cure, but so worthwhile. We need a cure!

The book is fine but the writers are insufferable and self absorbed. I saw 2 aunts die, one from a stroke in her 30s another from starvation from Huntingtons. I have a good chance of inheriting it and if this is my future well I'll stick to donating to Doctors Without Borders till I pass.

I still have not finished the book yet. But these are true stories of how HD affects us. I know most of them and so already have an idea how their life in affected by HD. HD is a nasty disease with no cure. It affects generations of families. Worst are those who have it when they are young. We also suffer financially. We need more awareness of HD. We need more个government involvement to help us. Sadly to say, my application for disability was denied. Yes US disability. They said I am not a US citizen and so on. Please help us to raise awareness of HD.

I am so grateful for those that contributed to this book by sharing personal experiences. A door has opened for me to become a caregiver and I will step through. There is much to do to prepare as best one can for some of the possibilities and eventualities, and the book is an invaluable orientation and eye opener.